Sofia Greene

An internet survey on Status migrainous

Dear All,

I am doing a research project under my doctor's suggestion on Status Migrainous with the Visual Problem as opposed to the constant pain problem. My doctor is Dr. Frank Clifford Rose director and consultant of the London Neurological Centre at Alliance Medical, Honorary Consulting Neurologist at Charing Cross Hospital and a Trustee of the Migraine Trust. He has also written several journals and books on migraine and introduced Sumatriptan to the world. He has agreed for me to do an internet research project to find people with a similar problem as mine so that we can all better understand it.

I am a "lay person" in the world of neurology and work as artist who has recently had this vision problem and am determined to make it stop. I plan to compile as much information as I can from the internet and then to present it to Dr. Rose. What ever he concludes or comes up with I will share with everyone who has participated, and who knows maybe will find a cure!

The project is for anyone who feels that they might have Status Migrainous, Persistant Migraine Aura or Prolonged Visual Disturbances or has a vision problem that last for long periods. If you are interested please fill in the questions below and email it to me at [email protected]. This email address is being protected from spam bots, you need Javascript enabled to view it. Please try to cut and paste it to your email so I don't have to open attachments. Include as little or as much information as you like, I will make sure that all your information is kept confidential and will only contact you to let you know the results of this project.

Thanks for your help!

Sofia Greene

1. Name or screen name (optional):
2. Email (optional):
3. Location (optional):
4. Age:
5. Sex:
6. Nationality and Race (optional):
7. Do you have classic or common migraine when did it begin?
8. What do you take for your classic or common migraine and does it help?
9. Have you been diagnosed with Status Migrainous (Migrainosis)?
10. What is your visual problem and how long does it last?
11. Any other problems that you think might be related?
12. What do you take or do for your vision problem and does it help?
13. Have you found a trigger for your vision problem?
14. What tests have you had and the results?
15. Other information you want to provide?